Hertsmere Learning Disability Forum


Wednesday 9th March, 2016, at 10:30 am

Drop-in Centre, 96, Shenley Road Borehamwood. WD6 1EF

Hosted by Hertsmere Mencap






Neil Hoskin

Linda Tanner, Glyn Thomas, Debbie, Teresa Gray Oliver Mulvey

Paul Moser, Forum Chairman

Lucy Canning, Hertsmere mencap

Susan Kennedy, Carer

Petrina and Laura, Walsingham, Bushey

Lata Rees, Watford Mencap

Karen Reilly, Watford Mencap

Phil Sweeney, Royal Mencap

Charley Coulouras, Royal Mencap

Anabel Taylor, Norwood


Sandra Lewis

Russ Teague


Paul Moser welcomed everyone and made the introductions.


Purple Star Strategy

Fay Heatley, Project Manager told us about the Project. She is in charge in Welwyn and Hatfield. Hilary Gardiner is responsible for Hertsmere but wasn’t available today

The Purple Folder programme started five years ago

It is clear there is a long way to go. For instance, only 9 out of 130 GP practices across Hertfordshire have signed up.

Chemists, dentists and opticians are not always willing - one Carer said her son refuses to take the Purple Folder with him to the dentist as the dentist would not deal with it.

Seven organisations across Hertfordshire have, so far, been awarded Purple Stars including Asda Pharmacy in Hatfield and the Lister Hospital Day Surgery. More are in the pipeline.

Several points were made regarding the Purple Folder - these below are a summary with Fay’s very helpful responses

1. From Petrina Goodwin (Walsingham): “How long should the signed sheets be kept in the Purple Folder, as you have been advised (during training) to archive them, when you feel that they are useful to be retained in the folder for continuity/communication?”  Hilary Gardener will respond on this (she is the lead nurse) with the local community learning disability nurse, Nancy.

2. All three partners were interested in the template/checklist now introduced for the GP’s Annual Health Check. Hilary has confirmed that it is on the GP record/IT systems, and the GP’s must now answer all questions/complete all areas, to complete the Annual Health check for an adult with a learning disability. Hilary will provide a version of the list for you – bearing in mind it is part of their IT system/data base.  She said that a way to check for anyone supporting someone with a learning disability is to ask for the Health Action Plan from the GP, following on from the Annual Health Check.  This (the Action Plan) should then be added to the Purple Folder for the service user.

3. Paul, the chair of Hertsmere Forum, asked about providers being on the Steering Group (the Project Board), for the Purple Star Strategy. The Steering Group has agreed Terms of Reference, which are reviewed annually, and it’s governance is evolving as the Strategy develops.  Membership includes representatives from the Community Learning Disability Nursing and Social Care service, Carers, Service Users, Experts By Experience and Advocates. If you would like this to be extended, the Steering Group will consider it, so please let Fay know.  Hilary has said that any proposed representatives must be providing direct care.

4. Fay will contact the web team to ask them to consider including interactive Purple Folder pages in the Hertfordshire County Councils’ new Purple Star web pages.


Survey of Learning Disabled Service Users

Hansa Nariapara who is Commissioning Officer, Integrated Health and Care Commissioning Team, Herts County Council talked about the survey they sent out two weeks ago to 1,000 of the approximately 4,000 Learning Disabled Service Users on their records. The survey, entitled “Improving Heath and Lives of Adults with Learning Disability in Hertfordshire" is designed to check how people feel about their services including checking their health, feeling safe and getting out and about in the community

Hansa stressed that the answers need to be the views of the Service User’s themselves!


Q&A session


Next Hertsmere Forum.

Wednesday 25th May, at the Drop-in Centre 96 Shenley Road Borehamwood. Please note we  will start at 11am and finish at 1pm The Agenda will be on our website at www.HertsmereLDforum.org as usual.


The meeting closed at 12.30pm